Our Strategic Framework
CLAN's entire modus operandi is based upon our "5 Pillars".
CLAN seeks to maximise quality of life for all children living with chronic health conditions in resource-poor countries of the world by supporting multisectoral action focusing on:
1. Access to affordable medication and equipment
2. Education (of children, families, health professionals, policy makers and the international community), Research & Advocacy
3. Optimal medical management (primary, secondary & tertiary prevention, with a bio-psycho-social focus)
4. Encouragement of Family Support Group networks
5. Alleviation of poverty by reducing financial burdens and helping families to find a pathway to financial independence
so that all members of the international community can enjoy healthy and happy lives, and know that their neighbours care.
CLAN's framework for action has many advantages
- it is simple, and easily communicated to a wide range of stakeholders, thereby facilitating multisectoral involvement and a comprehensive approach to a complex problem
- when communities of children (the support groups) are viewed as the central hub of all action by all stakeholders, genuine child and family centred and community development approaches are natural consequences
- local involvement, ownership and control is fostered, ensuring culturally appropriate action
- long-term, sustainable change is achieved through a development (rather than welfare) approach, and a focus on the broader social determinants of health rather than a narrow bio-medical approach
Some practical examples of achievements brought about through collaborative partnerships and a comprehensive, community development focus include:
- inclusion of hydrocortisone and fludrocortisone drugs within the World Health Organisation's Essential Medicines List for Children
- partnership with Australian-based pharmaceutical companies Alphapharm and Bristol-Myers Squibb to provide humanitarian donations of Hysone (hydrocortisone tablets) and Florinef (fludrocortisone tablets) to children living with CAH in Vietnam, the Philippines and Indonesia whilst long-term access solutions are found
- translation of key educational resources on CAH, Diabetes and Autism into different languages (often representing the first translated resources available in a country for families)
- partnership with RMIT, Vietnam to provide English education that allows local health professionals to engage in capacity-building education and training in Australia, through generous sponsorship from Hoc Mai Foundation
- training of health professionals in medical care both in-country and (through scholarships for travel) in leading paediatric institutions in Australia, such as Children's Hospital Westmead
- systematic implementation of new medical practices within existing health centres, improving quality of care
- establishment of family support groups for multiple conditions in multiple countries, with local ownership and control exemplified by exponential growth and request for ongoing expansion
- trials of enterprise development projects with Grameen Foundation Australia to help families to achieve financial independence and long-term ability to care for their children independently.
We choose to go to the moon. We choose to go to the moon in this decade and do the other things, not because they are easy, but because they are hard, because that goal will serve to organize and measure the best of our energies and skills, because that challenge is one that we are willing to accept, one we are unwilling to postpone, and one which we intend to win, and the others, too.
John F Kennedy (1962)*
* JFK lived with a chronic health condition called Addison's Disease. It is similar in many ways to Congenital Adrenal Hyperplasia (CAH), a condition that all of the children in the above left photo have, and can be treated with hydrocortisone and fludrocortisone tablets (as in the photo above right). CLAN chooses to help these children not because it is easy, but because we are unwilling to postpone helping them. Please join us so that we all may win.