Connecting families and children who are living with OI in Indonesia!

CLAN was proud to partner with health professionals and families in Jakarta in November 2013 for the launch of FOSTEO, the new OI Community in Indonesia. A full report on this is located here.

Connecting children and families who are living with Osteogenesis Imperfecta in Vietnam

On Monday 14 November, CLAN will partner with the National Hospital of Pediatrics (NHP) in Hanoi, Children's Hospital Westmead (CHW in Sydney, Australia), Wishbone Day and other key partners to support the launch of Vietnam's Inaugural Osteogenesis Imperfecta (OI) Club. There are about 120 children who present to NHP for management of OI, and this Club will bring them together as a community, and learn more from them about the best ways to ensure the children enjoy the highest quality of life possible.

CLAN is only starting to learn more about OI in Vietnam, but we are confident the same community development based actions taken for children living with other chronic health conditions in Vietnam will help children with OI to lead the highest quality of life possible. We are particularly excited to connect the Vietnamese OI Community with their broader neighbours internationally, thanks to the fantastic, joyous network of Wishbone Day. May 6 is Wishbone Day (International OI Awareness Day), and in 2012 we aim for the Vietnamese community to be a genuine part of this global celebration of life and love.

AWESOME NEW VIDEO THANKS TO WISHBONE DAY!!

CLICK HERE

For more information on Osteogenesis Imperfecta please visit:

- Wishbone Day

- Osteogenesis Imperfecta Foundation

- OI Australia

- OI-Support Philippines

- National Institutes of Health (US)

- Articles on OI in Vietnam:

     - Nghẹn ngào trước cảnh cặp sinh đôi bị bệnh xương thủy tinh
     - Tuổi thơ mong manh vì bệnh "xương thủy tinh" ác nghiệt

Report on launch of FOSTEO, Jakarta November 2014

Sunday 18th November was a special day in Jakarta, with a gathering of 20 families to launch FOSTEO, a new community of children, adults and families who are living with Osteogenesis Imperfecta (OI) in Indonesia. CLAN congratulates the OI Community of Indonesia and the wonderful health professionals of the Indonesian Pediatric Society who worked with so many fantastic partners to help those living with OI enjoy the highest quality of life possible.