Celebrating the #RightToHealth of #EVERYchild in the #CAHcommunity on UN World Day of Social Justice

Celebrating the #RightToHealth of #EVERYchild in the #CAHcommunity on UN World Day of Social Justice

On 20 February 2017,  UN World Day of Social Justice, CLAN was proud to launch a new Child-Friendly Rights flyer in partnership with the international Congenital Adrenal Hyperplasia (CAH) Community. 
 

The flyer is currently available in English, Spanish and Bahasa Indonesian, with French, Urdu and Vietnamese versions to follow shortly! 

 

We thank our many caring and passionate partners around the world committed to collaborative efforts to promote and protect the rights of #EVERYchild living with CAH.

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Why focus on CAH?

CAH is the most common adrenal condition of childhood and is generally associated with a high quality of life in high income countries, where affordable access to medicines (notably hydrocortisone and fludrocortisone tablets) and quality health care are available to all.

Unfortunately, in many low- and middle-income countries (LMICs), families are not able to affordably access the essential medicines they need to help their children with CAH achieve their full potential in life. Despite the fact hydrocortisone and fludrocortisone tablets are included within the World Health Organisation’s Essential Medicines List for Children, not every country has registered these drugs or made them affordably available to all. In some countries there are very few health professionals who understand how to manage CAH optimally, and families and children living with CAH can be made to feel isolated and stigmatised. Financial devastation is another all too common outcome for many.
 

Practical action to protect and promote the rights of #EVERYchild

Thanks to the UN Convention on the Rights of the Child (UNCRC), CAH communities around the world have the opportunity to better understand the rights of every child to fulfil their potential in life. CLAN is proud to share this new CAH child-friendly rights flyer and thank our many signatories for their support in its development. The CAH flyer is the latest in our range of child-friendly rights flyers dedicated to raising awareness of the rights of children living with Non-Communicable Diseases (NCDs) and other chronic health conditions in low- and middle-income countries. 
 

It's a matter of justice, not charity...

CLAN believes the UN World Day of Social Justice (20 February) is an appropriate day to launch the new Child-Friendly CAH Rights flyer and reflect on the many challenges facing children living with CAH in LMICs of the world. CLAN thanks the international CAH Community and its many passionate supporters for coming together to promote and protect the rights of #EVERYchild living with CAH. We hope the flyer will empower our collective advocacy efforts so that together we #LeaveNoChildBehind.

 

Would you like to get more involved?

We would welcome you to:

- subscribe to CLAN's CAH Community Links Newsletters
- donate and support a CAH Community with its work locally
- follow us on Twitter (@clanchildhealth) or Facebook
- use this Social Media Toolkit to get involved in the promotion of this new child-friendly rights flyer

- complete this short survey and tell us what you think about the new CAH rights flyer!
- watch the following video to learn more about CLAN's work with the CAH Community in Pakistan... 

Thank you caring and living as neighbours!

 

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