Congratulations to the Nigerian CAH Club, Lagos Chapter!

Congratulations to the Nigerian CAH Club, Lagos Chapter!

On 9 December 2016 members of the CAH Club of Nigeria (Lagos Chapter) came together to discuss issues relating to children living with Congenital Adrenal Hyperplasia (CAH) in Nigeria.

The meeting began with an opening prayer, and warm welcome to all.

Parents, children and health professionals gathered together to discuss local priorities and challenges. There was strong consensus that hydrocortisone and fludrocortisone tablets, the medicines needed for children living with CAH, are scarce and expensive in Nigeria. It was agreed by all in attendance that government assistance will be required to make these drugs affordably available.

Another challenge discussed at the meeting was the is generally low awareness amongst health professionals of the needs of children living CAH and how to best manage CAH. This makes the role of parents and families so important.

Financial burdens on families was also acknowledged, and participants explored novel opportunities to help families earn more income and achieve the financial freedom necessary to optimally care for their children. Partnership with local NGOs and charity organisations was discussed.

At the close of the meeting Executive members were elected (President, PR Officer and Secretary) and a closing prayer was shared.

CLAN congratulates the CAH Club members of Nigeria and their caring health professionals on their tremendous efforts to care for children living with CAH in Nigeria!