It's time to Stand Up & Be Counted for kids living with #NCDs ... #SUBC

It's time to Stand Up & Be Counted for kids living with #NCDs ... #SUBC

It has been a privilege for CLAN to advocate at an international level for children and adolescents who are living with chronic health conditions through our work with NCD Child.

Coming back to Vietnam in mid-2014 and meeting with families of children who are living with chronic health conditions reminds us yet again of how much further the world has to go before equity is achieved, and all young people who are living with Non-Communicable Diseases (NCDs) and other chronic health conditions are able to enjoy the highest quality of life possible.

In mid 2014 CLAN will be collaborating with a colleagues from Vietnam, Australia and the USA, supporting community meetings for families and young people living with Nephrotic Syndrome (a chronic kidney condition), Lupus (an autoimmune disease), Osteogenesis Imperfecta (a brittle bone disease) and Duchenne Muscular Dystrophy (causing progressive weakening of muscles).

Over a two week period and family support group meetings held across Vietnam (at Children's Hospitals 1 and 2 in HCMC; Hue Central Hospital and the National Hospital of Pediatrics in Hanoi) around 1000 families will come together for support, education, encouragement and empowerment. In addition, education sessions for health professionals will bring an estimated 300 doctors together for Continuing Medical Education (CME) opportunities.

CLAN is proud to be partnering with local experts and visiting colleagues from The NephCure Foundation, The Children's Hospital Westmead, and Albert Einstein College of Medicine in New York to make these Club meetings possible. Whilst family support groups and networks play an incredibly strong and active role in supporting health systems in high income countries, they are still a novelty in low- and middle-income countries, and CLAN is grateful for the opportunity to partner with others to help these budding communities grow stronger so that the children might enjoy the highest quality of life possible.

We would love to hear about work that YOU are doing to help children and adolescents who are living with #NCDs and other chronic health conditions in resource poor settings to enjoy the highest quality of life possible.
Please join us on Twitter and #SUBC (STAND UP & BE COUNTED)

... it's time our neighbours' children enjoy their rights to health and fulfilling futures too!

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