OI and DMD project in Vietnam July 2014

OI and DMD project in Vietnam July 2014

Update Report by Dr Sue Ditchfield (Project Co-Ordinator, CLAN)

CLAN would like to acknowledge the enormous contribution of the team from Children’s Hospital Westmead who donated their time, knowledge and experience as well as funding their own travel. Funds were raised through throwing cream pies at Professor David Little

The team was composed of Professor Craig Munns (Paediatric Endocrinologist), Professor David Little (Paediatric Orthopaedic Surgeon), Lucy Kevin( Specialist Genetic Counsellor), Verity Pacey and Kate McIntosh (Paediatric Physiotherapists specialising in OI and DMD). We also wish to thank Mr Doan and Ms Van the President and Vice-President of the DMD Support Group in Hanoi. Their planning and organization of the Duchenne Muscular Dystrophy (DMD) and Osteogenesis Imperfecta (OI) Meetings was excellent. CLAN is also fortunate to have the assistance and commitment of Dr Yen Thanh Mac, the CLAN Vietnam Program Manager without whom none of this would be possible.

We began in Hanoi, where meetings of both the OI and DMD Support Groups were held at the National Hospital of Pediatrics (NHP). These meetings were ably organised by Doan and Van. Verity and Kate were able to demonstrate various physiotherapy techniques and these were filmed by our great friend and supporter, Thu from C3 Vietnam.

A CME (Continuing Medical Education) Session was held the following day, which was compulsory for all of the NHP medical staff to attend. We then moved on to Hue for the inaugural OI and DMD Support Group meetings. Numbers were small but the groups will grow into the future. A CME was also held at Hue.  Finally a CME was held at the University in Ho Chi Minh City (HCMC). The focus here was on OI and the meeting was attended by a wide ranging group of professionals.

The inaugural DMD Support Group for HCMC was held at a coffee shop. Once again, although numbers were small, we have great hopes for the future of this group.

Thank-you again to everyone involved in this project - and particularly all those who threw pies at the prof to make it all possible!