Progress in Pakistan!

Progress in Pakistan!

Through the generosity of Pfizer Australia, CLAN has been able to employ a full time Community Development Officer at the National Institute of Children's Health in Karachi, Pakistan. We welcome Dr Rabia Baloch BDS, MPH to our team in Pakistan. 

Dr. Rabia Baloch BDS, MPH is an aspiring public health professional, dedicated learner, and new member of CLAN, working as the Community Development Officer at National Institute of Child Health, Karachi. She recently completed a degree in Public Health from the Dow University of Health Sciences, Karachi. She had been working on a variety of different projects launched by UNICEF to promote basic health in Karachi. Rabia has a great understanding of the Health Care system of Pakistan and is passionate about bridging the gap between people and access to quality healthcare.

According to Dr Rabia, "Pakistan is among those countries which are facing a “triple burden of disease”, where NCDs share the major portion. Dr. Rabia is working with a team of experts at NICH to develop and empower communities of patients and families dealing with endocrine disorders. Endocrine disorders among children hold a critical status in NCDs and Social and behavioral illnesses as well. She is currently engaged in a joint venture of CLAN and NICH to develop  a community for Congenital Adrenal hyperplasia (CAH) including other Disorders of Sexual Development, Diabetes Mellitus Type 1, Osteogenesis Imperfecta, Congenital Hypothyroidism and Childhood Obesity.

Considering the gravity of the Congenital Adrenal Hyperplasia and other DSDs in Pakistan, the team is dedicated to create awareness, disseminating knowledge and educating people regarding timely treatment and management of the disease. They are also scheduling club meetings for families addressing CLAN's 5 Pillars. Ensuring the availability of medications all over the country is a priority for the team and has already submitted a proposal to the government.

The main objective is to build the capacity of the CAH community and to provide maximum support. In doing so, an electronic register for CAH has been developed bringing in many benefits for monitoring and evaluation of the treatment and to collate very important research data. The registration of patients will begin from NICH followed by country wide registration of CAH patients. Similarly development of electronic registers for other endocrine disorders is also in process. To strengthen communication and networking between patients, families and doctors, a mobile App has been developed which will be available on Google Play and the App store very soon. The App contains CLAN's 5 Pillars and attempts to provide detailed information on CAH, growth hormone disorders, OI, Thyroid disorders, DB type 1 so that patients can easily resolve their issues and concerns.

Considerable effort is also going towards advocating for Polio as a disability and making it a priority. Dr Rabia is collaborating with Polio communities around the world to develop action plans and policies for the local Polio Community. 

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