Rainforest Ramble for CLAN in 2012!
You're WELCOME to help us establish a Duchenne Muscular Dystrophy (DMD) Club for children in Vietnam!
This year, CLAN is raising money to establish a new Duchenne Muscular Dystrophy (DMD) Club in Vietnam. DMD is a disorder of the muscles that results in progressive muscle degeneration and weakness. This affects mobility, but importantly also affects the muscles of breathing and the heart. DMD is a genetic condition caused by the absence of the ‘dystrophin’ protein, which stabilises the muscle membrane. Boys are primarily affected, and symptoms generally appear around 5 years of age. Leg muscles begin to weaken, causing the boys to fall more often, and have difficulty keeping up with their peers. Untreated, muscle weakness progresses relentlessly, and most boys need to use a wheelchair before their teens, they develop difficulty breathing in their teenage years, and lifespan is shortened to late teens - early twenties without specialist intervention.
CLAN has been asked by the National Hospital of Pediatrics in Hanoi to help establish a DMD Club for the 650 boys currently under their care. Currently there is very little available to families in the way of treatment and support in Vietnam. There are no educational resources yet available in Vietnamese language on DMD, nor forums for families to meet and learn more about the best ways to care for their sons and help them enjoy the highest quality of life possible. CLAN will focus on the translation of quality educational resources, conduct of a community Club meeting and other capacity building activities for the DMD community to effect sustainable, long-term change.
So how can we all help raise funds for the DMD Club in 2012?
CLAN’s fund raising efforts for the DMD Community of Vietnam will involve a fantastic night of talented artists presenting their own work and covers for easy listening and dancing on Saturday 2 June 2012 at the Wollongong Diggers Club and then a weekend of bush walking around Mt Keira and Mt Kembla (see photo above of Mt Keira!) on 11 and 12 August 2012. CLAN is hoping to raise $50,000 in 2012.
Thank you to everyone who has participated in our fundraising activities in past years - we have exceeded expectations on so many levels. We hope you join us again as it is hoped that your participation and sponsorship will go some way to achieving this year’s goal. Wouldn’t it be wonderful if we could raise all that was required for the DMD Club of Vietnam - or more?
If you would like to know more about the walk, please contact us at firstname.lastname@example.org
If you have friends that you think would like to come on the walk or they will sponsor you or make a donation please forward this email!