Thank-you Alphapharm!

Thank-you Alphapharm!

CLAN is very grateful to our long-term partners at Alphapharm Australia Pty Ltd for their ongoing commitment to children living in resource-poor countries with Congenital Adrenal Hyperplasia (CAH) community.

Children with CAH in Australia enjoy affordable access to hydrocortisone and fludrocortisone, two medicines on the World Health Organisation's Essential Medicines List for Children (WHO EMLc). Both drugs are essential parts of good CAH care, and fortunately for children in Australia, children living with CAH in Australia enjoy secure access to both drugs and a high quality of life and normal lifespan as a result.

In Pakistan, the CAH Community's experience is very different. Neither drug is locally registered or sold in the country, and families are forced to purchase drugs of dubious quality and very inflated cost on the black market.

With thanks to the generosity of Alphapharm's donation of a short-term, humanitarian supply of Hydrocortisone, doctors in Pakistan are now able to help the children access hydrocortisone tablets whilst they focus their efforts exclusively on seeking local registration of hydrocortisone tablets and a long-term, sustainable solution to the crisis families in Pakistan have endured. The Hysone tablets are being distributed free of charge to leading paediatric endocrinologists around the country, and records kept of those families who are receiving the medicines (families either sign their names or provide a thumb print in ink if they are not able to write).

With the launch in July 2015 of the Society of Pediatric Endocrinology & Diabetes (SPED) in Pakistan, hopes are high that doctors in the country will continue to drive amazing change for the children. The co-ordinated distribution of medicines such as Hysone via doctors across the country will not only save lives, but also help to establish a national register of CAH patients to assist in future planning and action.

Thank-you Alphapharm for all you are doing to contribute to long-term change for the children of CLIP in Pakistan.