WHERE WE WORK: FIJI
Congenital Adrenal Hyperplasia
In 2017 one of CLAN’s Youth Representatives travelled to Fiji and as a young person living with CAH was keen to connect with members of the CAH Community of Fiji. You can read more about his time spent in Fiji here.
A small CAH Club Meeting held in 2017 was a great opportunity for CLAN to learn more about the challenges facing the CAH Community of Fiji.
If you would like to support ongoing efforts for the CAH Community in Fiji, please visit CLANinFiji.gofundraise.com.au
If you would like to connect directly with the CAH Community of Fiji please contact us at firstname.lastname@example.org
In 2016, and as a result of the Snapshot Survey conducted by the ACE (APPES-CLAN Equity) Working Group, CLAN became aware of the urgent need for access to bisphosphonates for injection in Fiji for the management of Osteogenesis Imperfecta (OI). At the time there was only one child known to be surviving with OI in Fiji (another had recently passed), and so there was some urgency associated with ensuring urgent humanitarian supplies arrived in Fiji.
Working in partnership with paediatric endocrinologists in New Zealand (Prof Paul Hoffman) to support optimal use of best practice clinical guidelines, CLAN purchased bisphosphonates for injection in Australia and couriered them to Fiji for use by local health professionals.
If you would like to support ongoing efforts for the OI Community in Fiji, please visit CLANinFiji.gofundraise.com.au
If you would like to connect directly with the OI Community of Fiji please contact email@example.com