Pillar 2 - Education, Research & Advocacy

The essential role of publications

Traditionally the voices of chidren and families living with chronic medical conditions in resource-poor countries have gone unheard. Their suffering has not been raised to the attention of those in power, and so their plight goes unseen and unheard. The full tragedy occurs when children die... those most severely affected of all are lost forever, ensuring their voices are never heard.

As part of our second pillar, CLAN is committed to educating ourselves as much as anyone else. We are committed to the concepts of community development, hearing the voices of the communities we partner with, and letting their stories and their recommendations guide our efforts.

However, CLAN also believes that it is time these voices were heard by others as well. To this end we are committed to reporting back to communities and the broader national and international communities, to harness the support and multi-sectoral action that will be vital to long-term, sustainable change. Publications and communication through the media form an essential component of this strategic approach.

• The case for newborn screening for congenital adrenal hyperplasia in Australia
  Garry L Warne, Katrina L Armstrong, Thomas A Faunce, Bridget M Wilcken, Avihu Boneh, Elizabeth Geelhoed and Maria E Craig — Med J Aust 2010; 192 (2): 107.
• APPES (Asia Pacific Paediatric Endocrinology Society) December 2009 Newsletter - Update from CLAN
• CLAN represented at Asia 21 Young Leaders' Summit in Kuala Lumpur, Malaysia in November 2009. Article in Daily News and Analysis (DNA) Media, India reports on CLAN's vision for children living with chronic medical conditions in resource-poor countries in Asia.
• Grassroots Collaborations: a Means of Realizing the Rights to Health for Children Living with Chronic Health Conditions in Resource Poor Countries: An Act of Justice, Not Charity - Oral Presentation at the International Conference on Health, Rights and Development, Hanoi, October 2009.
• Interview on SBS Vietnamese Radio, Australia about CAH (in Vietnamese language)
• CLAN - A Grassroots Framework for Global Health Action
• Living with CAH in Vietnam - Journal Pediatric Endocrinology & Metabolism 2006
• CLAN's Oral Presentation at APPES Conference 2008 - CAH in Vietnam
• CLAN Report to APPES Members on Conference - APPES Newsletter March 2009
• Through My Eyes - sung by Thanh Bui (a song to help raise awareness relating to Autism)
• Qua doi mat em - translated version of Through My Eyes sung by the Vietnamese Autism Community on 18 April 2010, as they walked the streets of Hanoi, raising awareness of the issues facing children living with Autism in their country