WHERE WE WORK: UGANDA
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Nodding syndrome is a chronic debilitating disease that weakens muscles and makes the head loll on the shoulders, it is also characterized with seizures. Over the years nodding syndrome has affected a big community in Northern Uganda. In 2012, there were an estimated 3000 individuals living with nodding syndrome, a few years later, studies indicate a gross impact that spread to more than 8000 children commonly between the ages of 5-15 years and expanding from initial 3 districts (Pader, Kitgum and Lamwo) to also Gulu, Amuru, Oyam, Lira and Omoro districts.
To read more about CLAN's efforts in Uganda please read the project report on the Nodding Syndrome Support Groups launch held on 12 May 2018 at the Hope for Humans Centre, Odek Subcounty, Omoro District Uganda.
To read more about CLAN's efforts in Uganda please read the project report on the Nodding Syndrome Support Groups launch held on 12 May 2018 at the Hope for Humans Centre, Odek Subcounty, Omoro District Uganda.
Epilepsy Community in Uganda : CLAN's Zoom Trivia Fundraiser
Sincere thanks to our outstanding team of Youth Advisors for the fantastic fundraising event they ran for CLAN Child Health Africa and the Ugandan Epilepsy Community in September 2021. Thank you so much to the many friends of CLAN who joined the online Trivia Night - there were lots of laughs and joy, knowing all funds raised would be helping to strengthen the Epilepsy Community. Consultation with Community leaders identified the need for poorer families to have access to mobile phones and data plans so they could connect with one another and also health professionals in order to help their children enjoy the highest quality of life possible. Together our Trivia Buffs managed to raise just over AUD $1,000 and we look forward to bringing you updates from the Community once the phones have been distributed. Thank you so much to everyone involved!
Photo with the first support group - In green is the leader of the group
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Epilepsy Support Group Meeting - Dr. Twineamatsiko pictured front left talking with families
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