LARON SYNDROME
CONGENITAL
ADRENAL
HYPERPLASIA
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Diabetes
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Duchenne Muscular Dystrophy
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Nephrotic Syndrome
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Osteogenesis Imperfecta
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Rheumatic Heart Disease
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Other
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Laron Syndrome - most commonly referred to as Growth Hormone Insensitivity (GHI) - is a rare genetic illness that affects children. When properly diagnosed Laron syndrome can be treated, but when left untreated, children fail to grow in stature, and their final adult height is significantly reduced. This has a very negative impact on their quality of life and fulfillment of their life potential.
Treatment cost can vary from US$700 to US$1,400, or more per month, per individual patient, with the duration of treatment lasting many years. Considering the economic inflation in Pakistan currently (an estimated 25% in a country whose GNI per capita is US$770 (UNICEF 2006)) the treatment for even well off families seems like a far-fetched dream.
Laron Syndrome - most commonly referred to as Growth Hormone Insensitivity (GHI) - is a rare genetic illness that affects children. When properly diagnosed Laron syndrome can be treated, but when left untreated, children fail to grow in stature, and their final adult height is significantly reduced. This has a very negative impact on their quality of life and fulfillment of their life potential.
Treatment cost can vary from US$700 to US$1,400, or more per month, per individual patient, with the duration of treatment lasting many years. Considering the economic inflation in Pakistan currently (an estimated 25% in a country whose GNI per capita is US$770 (UNICEF 2006)) the treatment for even well off families seems like a far-fetched dream.
CLAN is proud to work with Laron syndrome communities around the world to drive change. Please click on the following flags to learn more about Laron syndrome in the following countries:
Pakistan
Click on the tabs above to access our rights flyers and additional resources.
