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On the 28th of February 2022, CLAN will be celebrating International Rare Disease Day for 2022, in partnership with Child & Youth Care Zimbabwe. Zimbabwe has been selected by EURORDIS (the European Organisation for Rare Diseases) as one of the African countries to present their Rare Diseases Heroes globally.
To celebrate this day, we would like to invite you to join Child & Youth Care Zimbabwe’s Virtual Run, for its final weeks, and on the 28th of February, to engage in a Facebook Live where Child & Youth Care will light up the exterior of buildings with the Rare Disease Day colours of green, pink, blue and purple, in solidarity with other participants. |
The Virtual Run has been hosted throughout February - but it is not too late to start now! There is a registration fee of $5 USD, and participants are encouraged to send proof of registration (and any additional donations you may like to make), running statistics and pictures of the event to Child & Youth Care Zimbabwe via Whatsapp using the number +263 777510370 !
The event can be joined from anywhere around the world. Challenge yourself, your family and your friends. Select your distance and fundraising goal yourself!
The event can be joined from anywhere around the world. Challenge yourself, your family and your friends. Select your distance and fundraising goal yourself!
In honour of this International Rare Disease Day 2022, EURORDIS has created a wonderful children’s book, ‘A Friendship Story’, by Danijela Knez and Ivan Drajzl. Distribution courtesy of CYC. Please find the book in its PDF form below:
| A Friendship Story |
To support this cause, make sure to access Child & Youth Care Zimbabwe’s platforms, and stay up to date via CLAN’s social media.
The link to watch the Facebook Live event will be updated as soon as it is made accessible. We hope to see many of you participating!
Child & Youth Care Zimbabwe is a Zimabwean-based NFP organisation ‘focused on improving the quality of life of families living with a rare disease’. Child & Youth Care focuses on research, education and advocacy, promoting the rights of people living with rare diseases. Child & Youth Care works within the framework of global health coverage for all. Please see Child & Youth Care’s website for more information on their tremendous work!
