WHERE WE WORK: OTHER COUNTRIES
Australia
|
Burundi
|
Fiji
|
Indonesia
|
Pakistan
|
Philippines
|
Vietnam
|
Uganda
|
OTHER
|
Nigeria
Congratulations to the Nigerian CAH Club, Lagos Chapter!
On 9 December 2016 members of the CAH Club of Nigeria (Lagos Chapter) came together to discuss issues relating to children living with Congenital Adrenal Hyperplasia (CAH) in Nigeria.
The meeting began with an opening prayer, and warm welcome to all.
Parents, children and health professionals gathered together to discuss local priorities and challenges. There was strong consensus that hydrocortisone and fludrocortisone tablets, the medicines needed for children living with CAH, are scarce and expensive in Nigeria. It was agreed by all in attendance that government assistance will be required to make these drugs affordably available.
Another challenge discussed at the meeting was the is generally low awareness amongst health professionals of the needs of children living CAH and how to best manage CAH. This makes the role of parents and families so important.
Financial burdens on families was also acknowledged, and participants explored novel opportunities to help families earn more income and achieve the financial freedom necessary to optimally care for their children. Partnership with local NGOs and charity organisations was discussed.
At the close of the meeting Executive members were elected (President, PR Officer and Secretary) and a closing prayer was shared.
CLAN congratulates the CAH Club members of Nigeria and their caring health professionals on their tremendous efforts to care for children living with CAH in Nigeria!
Kenya
Rheumatic Heart Disease
Congratulations to the Machakos Rheumatic Heart Disease Club!!
Rheumatic heart disease (RHD) is the most common acquired heart disease in children (common age group is 5 to 15 year olds) in developing countries. It is estimated that approximately 15 million people are affected globally with 233000 succumbing to it.
RHD is closely associated with poverty and poor quality medical services, and most affected patients are not able to access medical services. RHD is still a major problem in Kenya, and children and their families have previously suffered this preventable condition in silence.
In March 2014, and as part of CLAN's commitment to the UN Secretary General's Every Woman Every Child movement, an inaugural RHD Club was launched in Nairobi utilising CLAN's 5 pillars and strategic framework for action. The Nairobi RHD Club offered a platform for families, children and youth living with RHD in Kenya to have their voices heard and proved to be an important foundation for advocacy and change for the RHD community of Kenya.
In December 2015 a second RHD Club was launched in Machakos, Kenya as part of CLAN's ongoing commitment to EWEC.
Huge congratulations to the wonderful team at Machakos Level 5 Hospital and the Machakos Heart Evaluation Centre for their fantastic efforts making this event possible. CLAN would like to particularly thank and acknowledge the efforts of Drs Duncan Matheka, Mellany Murgor, Eric Irungu and Laura Musambayi for their commitment and dedication to the RHD community of Kenya.
Please find a VIDEO and more detailed report of the inaugural Machakos RHD Club meeting here:
MACHAKOS RHD REPORT - December 2015 FINAL.pdf 976.45 kBCLAN wishes the RHD community of Kenya every success in their ongoing efforts to promote and protect the rights of children in Kenya to health and life - and a future free of completely preventable non-communicable diseases (NCDs) such as Rheumatic Heart Disease.
CLAN is grateful to the RHD Community of Kenya for leading work on the development of a Child-Friendly Rights Flyer on RHD in Swahili (link here).
Rheumatic heart disease (RHD) is the most common acquired heart disease in children (common age group is 5 to 15 year olds) in developing countries. It is estimated that approximately 15 million people are affected globally with 233000 succumbing to it.
RHD is closely associated with poverty and poor quality medical services, and most affected patients are not able to access medical services. RHD is still a major problem in Kenya, and children and their families have previously suffered this preventable condition in silence.
In March 2014, and as part of CLAN's commitment to the UN Secretary General's Every Woman Every Child movement, an inaugural RHD Club was launched in Nairobi utilising CLAN's 5 pillars and strategic framework for action. The Nairobi RHD Club offered a platform for families, children and youth living with RHD in Kenya to have their voices heard and proved to be an important foundation for advocacy and change for the RHD community of Kenya.
In December 2015 a second RHD Club was launched in Machakos, Kenya as part of CLAN's ongoing commitment to EWEC.
Huge congratulations to the wonderful team at Machakos Level 5 Hospital and the Machakos Heart Evaluation Centre for their fantastic efforts making this event possible. CLAN would like to particularly thank and acknowledge the efforts of Drs Duncan Matheka, Mellany Murgor, Eric Irungu and Laura Musambayi for their commitment and dedication to the RHD community of Kenya.
Please find a VIDEO and more detailed report of the inaugural Machakos RHD Club meeting here:
MACHAKOS RHD REPORT - December 2015 FINAL.pdf 976.45 kBCLAN wishes the RHD community of Kenya every success in their ongoing efforts to promote and protect the rights of children in Kenya to health and life - and a future free of completely preventable non-communicable diseases (NCDs) such as Rheumatic Heart Disease.
CLAN is grateful to the RHD Community of Kenya for leading work on the development of a Child-Friendly Rights Flyer on RHD in Swahili (link here).
Asthma
CLAN is grateful to Dr Laura Musambayi for leading work on the development of our Child-Friendly Rights Flyer to support children living with Asthma.
