World Duchenne Day
September 7
World Duchenne Awareness Day is every year on September 7th.
CLAN has been working with and supporting the Duchenne Muscular Dystrophy (DMD) Community in Vietnam. The most recent project is the joint purchase of harmonicas to help strengthen the lungs of young people living with DMD.
This project’s goal was to connect people living with DMD and their families, provide them with support and introduce the harmonica as a creative means of managing the condition. Practicing the harmonica encourages diaphragmatic breathing, which can result in increased oxygen intake and lung function. The young people and their families were also given insight into the ICF (International Classification of Functioning, Disability and Health), which empowers young people with knowledge to understand and communicate about their experiences with DMD.
The project included a Parents’ meeting, where families were able to connect with each other and discuss the means by which they can support their children who are living with DMD. Along with this, Community Development Officer Dr. Yen-Thanh Mac and Harmonica Instructor Phat Vo introduced the harmonica to the young people, and encouraged them to play together online. Throughout the project, Yen-Thanh and Phat visited the DMD community members to connect with them and follow up with their progress.
CLAN thanks Dr. Yen-Thanh and Mr. Phat Vo for their efforts on this project.
CLAN has been working with and supporting the Duchenne Muscular Dystrophy (DMD) Community in Vietnam. The most recent project is the joint purchase of harmonicas to help strengthen the lungs of young people living with DMD.
This project’s goal was to connect people living with DMD and their families, provide them with support and introduce the harmonica as a creative means of managing the condition. Practicing the harmonica encourages diaphragmatic breathing, which can result in increased oxygen intake and lung function. The young people and their families were also given insight into the ICF (International Classification of Functioning, Disability and Health), which empowers young people with knowledge to understand and communicate about their experiences with DMD.
The project included a Parents’ meeting, where families were able to connect with each other and discuss the means by which they can support their children who are living with DMD. Along with this, Community Development Officer Dr. Yen-Thanh Mac and Harmonica Instructor Phat Vo introduced the harmonica to the young people, and encouraged them to play together online. Throughout the project, Yen-Thanh and Phat visited the DMD community members to connect with them and follow up with their progress.
CLAN thanks Dr. Yen-Thanh and Mr. Phat Vo for their efforts on this project.
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