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WHERE WE WORK: UGANDA


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  • Epilepsy
  • Nodding Syndrome
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​Epilepsy Community in Uganda: CLAN's Zoom Trivia Fundraiser
​Sincere thanks to our outstanding team of Youth Advisors for the fantastic fundraising event they ran for CLAN Child Health Africa and the Ugandan Epilepsy Community in September 2021. Thank you so much to the many friends of CLAN who joined the online Trivia Night - there were lots of laughs and joy, knowing all funds raised would be helping to strengthen the Epilepsy Community. Consultation with Community leaders identified the need for poorer families to have access to mobile phones and data plans so they could connect with one another and also health professionals in order to help their children enjoy the highest quality of life possible. Together our Trivia Buffs managed to raise just over AUD $1,000 and we look forward to bringing you updates from the Community once the phones have been distributed. Thank you so much to everyone involved!
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​Link to Dr. Andrew Twineamatsiko's video on the Ugandan Epilepsy Community
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Other
​Nodding syndrome is a chronic debilitating disease that weakens muscles and makes the head loll on the shoulders, it is also characterized with seizures. Over the years nodding syndrome has affected a big community in Northern Uganda. In 2012, there were an estimated 3000 individuals living with nodding syndrome, a few years later, studies indicate a gross impact that spread to more than 8000 children commonly between the ages of 5-15 years and expanding from initial 3 districts (Pader, Kitgum and Lamwo) to also Gulu, Amuru, Oyam, Lira and Omoro districts.

To read more about CLAN's efforts in Uganda please read the project report on the Nodding Syndrome Support Groups launch held on 12 May 2018 at the Hope for Humans Centre, Odek Subcounty, Omoro District Uganda. ​
Also See:
Where We Work: Burundi
Where We Work: Other
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Acknowledgement of Country. In the spirit of reconciliation, CLAN acknowledges the Traditional Custodians of Country throughout Australia and the connections of Aboriginal and Torres Strait Islander peoples to land, sea and community. In particular, we acknowledge the Wallumedegal Peoples of the Eora Nation, on whose land CLAN (Caring & Living As Neighbours) is headquartered. We pay our respect to Elders past and present and extend that respect to all First Nations leaders around the world.

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© CLAN INC 2019
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CLAN (Caring & Living As Neighbours) Inc
ABN 30 897 322 928 | PO Box 996, Toronto  NSW  2283, Australia
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  • Home
  • What We Do
    • About CLAN
    • Our Five Pillars
    • Child Rights >
      • CAH Rights Flyer
      • Diabetes Rights Flyer
      • Epilepsy Rights Flyer
      • RHD Rights Flyer
      • Asthma Rights Flyer
      • Childhood Cancer Rights Flyer
      • OI Rights Flyer
      • Newborn Screening Rights Flyer
    • Our Committee
    • Our Team >
      • CLAN Child Health Africa
      • CDOs
      • Youth Advisors
      • UN Youth Representatives
      • New Colombo Plan Scholarship Holders
      • Acknowledging people who have worked with CLAN
    • Partnerships
    • Policies >
      • Rights Protection and Inclusion
      • Participation, Empowerment and Local Inclusion
      • Sustainable Change
      • Quality and Effectiveness
      • Collaboration
      • Communication
      • Governance
      • Resource Management
      • People and Culture
  • Where We Work
    • WHO Africa Region >
      • Uganda
      • Burundi
      • Nigeria
      • Kenya
    • WHO Americas Region
    • WHO Eastern Mediterranean Region >
      • Pakistan
    • WHO Europe Region
    • WHO South-East Asia Region >
      • Indonesia
    • WHO Western Pacific Region >
      • Australia
      • Fiji
      • Philippines
      • Vietnam
  • Communities
    • Asthma
    • Autism
    • CAH
    • Cerebral Palsy
    • Childhood Cancer
    • Diabetes
    • DMD
    • Epilepsy
    • Nephrotic Syndrome
    • Nodding Syndrome
    • Osteogenesis Imperfecta
    • RHD
  • News
    • UN Events >
      • Commission on the Status of Women >
        • CSW70
        • CSW69
        • CSW 68
        • CSW67
      • Commission for Social Development >
        • CSocD64
        • CSocD62
      • Science Summit >
        • UNGA80 Science Summit
        • UNGA79 Science Summit
      • UN Youth Events >
        • Youth Voices for Health & Gender Equity
        • ECOSOC Youth Forum 2025
      • SIDS4
      • WHA 77
      • UNHLM on UHC
      • UNHLPF 2022 Report
    • MATES4Kids
    • IndigenousNCDs
    • COVID-19 >
      • COVID-19 Infographics
      • COVID-19 Resources >
        • Vaccines
    • Blogs
  • Donate
  • Fundraisers
    • Rare Disease Day 2022
    • CAH Awareness Month 2022
  • Contact