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WHERE WE WORK:  PHILIPPINES


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CLAN’s partnerships in the Philippines first started in 2005, when we were invited to collaborate with families and health professionals and work towards the progressive realisation of the rights of all children who are living with CAH.
  • Congenital Adrenal Hyperplasia
  • Osteogenesis Imperfecta
<
>
​General Information on CAH in The Philippines
CLAN was proud to attend the Inaugural meeting of CAHSAPI (the Filipino CAH Support Group) at the Philippines General Hospital (PGH) on 11th December 2005.

In 2005 life was very hard for families living with CAH in the Philippines. Despite the fact that Newborn Screening for CAH had been available in the country since the enactment of the Newborn Screening Act in 2004, neither of the two drugs essential for a healthy life with CAH were locally available. This was despite both drugs being listed on the World Health Organisation's Essential Medicines List for Children (EMLc since 2008) and extensive advocacy efforts by numerous stakeholders.
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Thanks to generous support from Alphapharm Australia Pty Ltd, CLAN was able to supply early humanitarian aid to help meet the needs of all children living with CAH for several years, until a more sustainable, long-term solution was achieved in the form of registration of hydrocortisone tablets.

Achievements of CAHSAPI

There have been many exciting developments underway in the Philippines for CAH families, and this is largely thanks to the Philippines Society of Pediatric Metabolism and Endocrinology (PSPME) and staff at the  Philippines General Hospital (PGH) who have worked tirelessly with and for the CAHSAPI community. In particular, the pediatric endocrinologists at PGH, Manila have been instrumental in the changes achieved so far.

​Key achievements to date by all stakeholders include:
  • improved access to the most affordable sources of quality hydrocortisone and fludrocortisone for all patients with CAH in the Philippines
  • regular CAHSAPI meetings, with educational talks in the subjects of treatment, surgery and psychology (amongst others), and good opportunities for families to support one another and network
  • translation of key educational resources on CAH into Tagalog (a local dialect)
  • attendance by paediatric endocrinology fellows at NBS and CAH conferences internationally
  • development of an online social media platform to support ongoing engagement and communication amongst CAHSAPI members (Facebook)
  • development of a CAH register
  • surveys of families to understand the key needs of families
  • identification of a local manufacturer willing to manufacture hydrocortisone tablets locally
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Congenital Adrenal Hyperplasia
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Osteogenesis Imperfecta
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© CLAN INC 2019
​
CLAN (Caring & Living As Neighbours) Inc
ABN 30 897 322 928 | PO Box 996, Toronto  NSW  2283, Australia
[email protected]
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  • Home
  • What We Do
    • About CLAN
    • Our Five Pillars
    • Child Rights >
      • CAH Rights Flyer
      • Diabetes Rights Flyer
      • Epilepsy Rights Flyer
      • RHD Rights Flyer
      • Asthma Rights Flyer
      • Childhood Cancer Rights Flyer
      • OI Rights Flyer
      • Newborn Screening Rights Flyer
    • Our Committee
    • Our Team >
      • CDOs
      • Youth Advisors
      • UN Youth Representatives
      • New Colombo Plan Scholarship Holders
    • Partnerships
    • Acknowledging CDOs & Interns who have worked with CLAN
    • Policies >
      • Rights Protection and Inclusion
      • Participation, Empowerment and Local Inclusion
      • Sustainable Change
      • Quality and Effectiveness
      • Collaboration
      • Communication
      • Governance
      • Resource Management
      • People and Culture
  • Where We Work
    • WHO Africa Region >
      • Uganda
      • Burundi
    • WHO Americas Region
    • WHO Eastern Mediterranean Region >
      • Pakistan
    • WHO Europe Region
    • WHO South-East Asia Region >
      • Indonesia
    • WHO Western Pacific Region >
      • Australia
      • Fiji
      • Philippines
      • Vietnam
    • Other
  • Communities
    • CAH
    • Diabetes
    • DMD
    • Epilepsy
    • NS
    • OI
    • RHD
    • Other
  • News
    • UN Events >
      • ECOSOC Youth Forum 2025
      • NGO CSW69
      • Science Summit UNGA79
      • SIDS4
      • WHA 77
      • UN NGO CSW 68
      • UN CSD 62
      • UNHLM on UHC
      • UN CSW67
      • UNHLPF 2022 Report
    • MATES4Kids
    • IndigenousNCDs
    • COVID-19 >
      • COVID-19 Infographics
      • COVID-19 Resources >
        • Vaccines
        • Mask Wearing and Personal Hygiene
        • CAH
        • Diabetes
        • DMD
        • NS
        • OI
        • RHD
    • 2023 Intl. Day of Women and Girls in Science
    • Blogs
    • Events Calendar
  • Donate
  • Fundraisers
    • Rare Disease Day 2022
    • CAH Awareness Month 2022
  • Contact