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DUCHENNE MUSCULAR DYSTROPHY (DMD)


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Congenital Adrenal Hyperplasia
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Diabetes
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DUCHENNE MUSCULAR DYSTROPHY
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Nephrotic Syndrome
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Osteogenesis Imperfecta
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Rheumatic Heart Disease
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Other

  • What is Duchenne Muscular Dystrophy (DMD)?
  • Resources
  • Community Links
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Duchenne muscular dystrophy (DMD) is the most common muscle disease of childhood. One in every 3,500 newborn boys have Duchenne. Very rarely it also affects girls (approximately 1 in 50 million girls). It occurs across all races and cultures.

Symptoms of DMD usually appear between ages two and five years and may include difficulty: running, jumping, climbing and rising from the floor, frequent falls, enlarged calf muscles, toe walking and delays in language development. The first muscles affected are those around the hips and upper thigh. Weakness gradually progresses to include all the muscles used for movement (skeletal muscles), the muscles used for breathing and the heart. Young men with DMD usually die from heart or respiratory failure by their late 20s.
 
With improvements in care that have occurred in the past few decades, such as the provision of equipment to help with breathing, men with DMD are living much longer. For those living in low- and middle-income countries however, access to mobility aids and appropriate care can be a major barrier to optimal quality of life being achieved.
DMD COVID-19 Resources
MD Australia
DMD Conference, Vietnam, April 2024
File Size: 5979 kb
File Type: pdf
Download File

SMA Club Meeting, Vietnam, April 2023
File Size: 11417 kb
File Type: pdf
Download File

​CLAN is proud to work with DMD communities around the world to drive change. Please click on the following flags to learn more about DMD in the following countries:
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Vietnam
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CLAN (Caring & Living As Neighbours) Inc
ABN 30 897 322 928 | PO Box 996, Toronto  NSW  2283, Australia
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  • Home
  • What We Do
    • About CLAN
    • Our Five Pillars
    • Child Rights >
      • CAH Rights Flyer
      • Diabetes Rights Flyer
      • Epilepsy Rights Flyer
      • RHD Rights Flyer
      • Asthma Rights Flyer
      • Childhood Cancer Rights Flyer
      • OI Rights Flyer
      • Newborn Screening Rights Flyer
    • Our Committee
    • Our Team >
      • CDOs
      • Youth Advisors
      • UN Youth Representatives
      • New Colombo Plan Scholarship Holders
    • Partnerships
    • Acknowledging CDOs & Interns who have worked with CLAN
    • Policies >
      • Rights Protection and Inclusion
      • Participation, Empowerment and Local Inclusion
      • Sustainable Change
      • Quality and Effectiveness
      • Collaboration
      • Communication
      • Governance
      • Resource Management
      • People and Culture
  • Where We Work
    • WHO Africa Region >
      • Uganda
      • Burundi
    • WHO Americas Region
    • WHO Eastern Mediterranean Region >
      • Pakistan
    • WHO Europe Region
    • WHO South-East Asia Region >
      • Indonesia
    • WHO Western Pacific Region >
      • Australia
      • Fiji
      • Philippines
      • Vietnam
    • Other
  • Communities
    • CAH
    • Diabetes
    • DMD
    • Epilepsy
    • NS
    • OI
    • RHD
    • Other
  • News
    • UN Events >
      • ECOSOC Youth Forum 2025
      • NGO CSW69
      • Science Summit UNGA79
      • SIDS4
      • WHA 77
      • UN NGO CSW 68
      • UN CSD 62
      • UNHLM on UHC
      • UN CSW67
      • UNHLPF 2022 Report
    • MATES4Kids
    • IndigenousNCDs
    • COVID-19 >
      • COVID-19 Infographics
      • COVID-19 Resources >
        • Vaccines
        • Mask Wearing and Personal Hygiene
        • CAH
        • Diabetes
        • DMD
        • NS
        • OI
        • RHD
    • 2023 Intl. Day of Women and Girls in Science
    • Blogs
    • Events Calendar
  • Donate
  • Fundraisers
    • Rare Disease Day 2022
    • CAH Awareness Month 2022
  • Contact