OSTEOGENESIS IMPERFECTA (OI)
Congenital Adrenal Hyperplasia
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Diabetes
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Duchenne Muscular Dystrophy
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Nephrotic Syndrome
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OSTEOGENESIS IMPERFECTA
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Rheumatic Heart Disease
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Other
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Osteogenesis Imperfecta (OI) is an inherited condition charactised by bones that break easily – usually from little or no apparent cause.
A classification system of different types of OI is commonly used to help describe how severely a person with OI is affected. For example, a person may have just a few fractures in their lifetime, or they may experience as many as several hundred fractures.
Fortunately, there is effective medication available (bisphosphonates for injection) that can strengthen the bones of people who are living with OI, and help reduce the number of fractures they experience.
Unfortunately however, children and families living with OI in many low- and middle-income countries are not able to affordably access the medicines and care they need to survive and thrive. CLAN is committed to working with OI Communities internationally to drive sustainable solutions and long-term change.
A classification system of different types of OI is commonly used to help describe how severely a person with OI is affected. For example, a person may have just a few fractures in their lifetime, or they may experience as many as several hundred fractures.
Fortunately, there is effective medication available (bisphosphonates for injection) that can strengthen the bones of people who are living with OI, and help reduce the number of fractures they experience.
Unfortunately however, children and families living with OI in many low- and middle-income countries are not able to affordably access the medicines and care they need to survive and thrive. CLAN is committed to working with OI Communities internationally to drive sustainable solutions and long-term change.
CLAN is proud to work with OI communities around the world to drive change. Please click on the following flags to learn more about OI in the following countries:
Indonesia
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Vietnam
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Pakistan
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Fiji
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